Ok, folks, after a good deal of scouring the internet and deep thought, here are our Top Picks for Dysautonomia Gear!
Some of these items are ‘awareness’ oriented, some have been chosen for their potential for personal inspiration (both blatant and subtle), some for functionality, and some for their role in funding research and support for the Dysautonomia community through a portion of the proceeds being donated to related organizations.
We’ll start out with the Top Picks for Awareness Gear in our specific special color – turquoise! While blue (and even red!) are being used for awareness of Dysautonomia, my personal favorite is turquoise, AND it is the ‘official’ color adopted by Dysautonomia International…so I’m going with it. ;)
Rope Bracelets by WhatKnotShop on etsy.com
Tie one on for the Dysautonomia Foundation with this special custom beach teal blue one button rope bracelet.
A portion of the proceeds from the sale of these limited edition bracelets supports the Dysautonomia Foundation.
*Personal review coming soon! This artist is providing a sample of his work and we will let you know all about it as soon as possible. So excited! I would love for this to be a ‘thing’ in the Dysautonomia community. I love the color, it is gender neutral, and it’s casual and cool. How great would it be to see someone else wearing one and know that you aren’t alone out there?
Believe Dysautonomia Awareness Headband by FeistyFreckle on etsy.com
I love this for the younger Dysautonomia warriors out there among us. It is fresh and sweet, and can start a day off as a reminder that life isn’t over just because you are facing this illness. :) We can believe in ourselves, others, and hope for a cure or treatment in the future!
Dysautonomia Awareness Bracelets by Bravelets.com
These bracelets are subtle and hip, while reminding you to ‘be brave’ and sport our fabulous turquoise!
When you purchase one of these bracelets, $10 will be donated to Dysautonomia – and you can choose to which organization (from the list of 6 great options) the money will go to!
Dysautonomia Nail Wraps by Heather & Jamberry on dysautonomiainternational.org
Since this is a custom wrap exclusively designed and printed by Heather Schurr for October’s 2014 Dysautonomia Awareness Month celebration, you will not see it on the main Jamberry website. In order to purchase these wraps and support Dysautonomia International, you must purchase a gift certificate from Heather for each sheet you wish to order, select Dysautonomia International at checkout, then email Heather at email@example.com with your code(s). Heather will ship the product to you.
In celebration of Dysautonomia Awareness Month, available through the end of October 2014, 30% of the proceeds from every purchase made through Independent Jamberry Consultant Heather Schurr’s website (a fellow POTS/NCS patient) will be donated to Dysautonomia International.
Check out these awesome spoon themed pieces. I found so many awesome spoon themed jewelry, that I will be posting a Top Picks specifically for them soon – but for now, here are my very favorites…
Living with Pots Necklace and Invisible Disibility Decal by TachyAshleyDesigns on etsy.com
This shop has several very cool items for Dysautonomia – this necklace is specifically for POTS, and I love it, but she has a variety of Dysautonomia items that are very stylish. I also like the decal, which makes a statement without being sarcastic, which can be useful in spreading awareness.
Spoon Bracelet by Aquamarine Crystal by Spoonfest Jewelry on etsy.com
This is not specifically for Dysautonomia, but the spoon theory connection and the aquamarine/blue crystal really jump out at me as an incredibly meaningful piece of jewelry for those of us with Dysautonomia. It would certainly inspire me to wear it!
Mens Spoon Rings by dremeWorks on etsy.com
For those men out there with Dysautonomia who can relate to the spoon theory but can’t imagine (or find) a manly piece of spoon jewelry, this is it! I love the style of this artist and the masculinity of the designs he works with.
In Case Of Emergency, Break Glass Necklace by lglitterbugl on etsy.com
This necklace is actually for lupus/fibromyalgia but I have arranged with the artist to make a Dysautonomia specific piece by special order, if you contact her. It cracks me up, and I love the lighthearted take on the spoon theory. And you were probably diagnosed with fibro first anyway, right? ;) I know I was!!
(This particular item has sold, but you can special order one.) :)
If you are looking for something elegant and that supports Dysautonomia, while not being overtly “awareness” oriented, check out these lovely pieces which help to fund research and support Dysautonomia patients…
Familial Dysautonomia Awareness Bracelet by Etta Fainblatt on familialdysautonomia.org
Etta Fainblatt, who lost her son to FD, has designed this beautiful bracelet
to help fund research for a cure for FD. Crystal and cobalt blue Swarovski beads, Sterling silver spacers, connector and an attractive boy and girl charm combine to create this stunning piece of jewelry can be had as a wrist or ankle bracelet.
Live and Let Live Bracelet by Catherine M. Zadeh on familialdysautonomia.org
Simple, stylish bracelets encouraging us to keep going, and reminding us to “live and let live” while helping to further research and treatment for Dysautonomia. (Yay!)
Proceeds from the sales of these bracelets will be used to fund FD research and treatment.
A tax-deductible receipt will be issued by the Dysautonomia Foundation for the proceeds
generated by the sale of the bracelets.
Pearls of Hope Set by CeCe Hillman on dynainc.org
The Pearls of Hope collection features stylish sterling silver pearl pendants, handmade by CeCe and her family. Both pieces are available in traditional white pearl (pictured) or in baby pink pearl and the necklace is available on 16, 18 and 20 inch chains.
Proceeds from Pearls of Hope go to benefit Disautonomia Youth Network of America.
There are tons of shirts out there but these are the coolest, in my book. If you follow the links, you can check out all of the other styles as well!
Dysautonomia Hoodie on Cafe Press
Hope, Faith, Cure T Shirt on Zazzle
Drop it like it’s POTS on Zazzle
Dysautonomia Blue Ribbon T Shirt on Zazzle
Men’s Dysautonomia Hoodie on Cafe Press
Dysautonomia Wings Men’s T Shirt on Cafe Press
Invisible Illness t for men on Zazzle
Dysautonomia Wings Men’s T Shirt on Zazzle
Chronically Fabulous Gear by FabulousByKat on etsy.com
“Just because you are chronically ill, doesn’t mean you can’t be Chronically Fabulous.” Not specifically for Dysautonomia, but so cool I had to include it. :)
There are a number of items available that can be encouraging and practical while making a statement for Dysautonomia at the same time! Here are a few that I especially love…
I love the idea of having a dedicated water bottle to encourage ourselves while letting others know why we ALWAYS have water with us! A little awareness and personal reminder all at once…
I steered away from bottles that had to be twisted on and off to drink from them, but there are tons of options out there. These links will take you to the main pages where you can noodle about to pick your own favorites.
Thermos water bottles on Cafe Press
This is the type of water bottle I have for my daughter (but hers has Barbie on it) and it has been a very sturdy bottle. She is 5 and dropped and busted three other water bottles I bought at the same time, already!
Igloo Insulated Coolers on Zazzle
Since we always need to stay hydrated and keep things like water and electrolyte drinks on hand at all times, I think these insulated coolers are perfect. The beverage dispensers come in 4 sizes from big to ginormous and the can coolers come in “12” and “24” can sizes…though not sure what that equates to in water bottles and Gatorade. ;)
We can all use a little reminder that we can keep going when it doesn’t feel like we can. Here are a few little reminders for the extra tough moments…
Travel Coffee Mug on Zazzle
Sometimes coffee is all that keeps us going (for those that can tolerate it, of course). I especially love this “Losing is not an option” mug because that’s pretty much why I drink coffee!
Awareness Pins on Zazzle
Need Flare? Here are 352 options for Dysautonomia awareness pins!
Strong Key Chain on Zazzle
I’m not a burden, I am a human being. I’m not lazy, I am sick. I’m not complaining, I am explaining. I’m not helpless, I am STRONG.
I dig it.
Hope Matters Magnet on Zazzle
When all you can do is drag yourself to the fridge for some hydration or food, a little ray of hope might be just what you need to keep going…back to your chair. ;)
Never Give Up Pillow on Zazzle
We all know there are days (sometimes weeks) where getting vertical is just not an option. When hope feels like a distant memory, maybe snuggling up with this pillow can remind us that it isn’t over. There will always be another good day (or week!) coming…eventually. ;)
Journal on Zazzle
If you do happen to be stuck in bed, or just need to vent, perhaps reminding yourself that you “aren’t going down without a fight” and writing about it would help. :)
For the Service Dogs
There are a lot of Dysautonomia Service Dogs out there, and these accessories can add a little awareness to their style. There are several coordinating designs for collars, leashes, and tags, but these were my fav’s…
Dysautonomia Ribbon Dog Collar on Zazzle
Dysautonomia Dog Leash on Zazzle
Dysautonomia Dog ID Tag on Zazzle
Each Top Pick item or artist/shop has been chosen purely on their own merit and awesomeness rating. After each item was chosen, I contacted the artist/company to see if any special orders would be welcomed, if any discounts were possible (many were not because they already are donating proceeds, or other good reasons), if I could try out a sample to personally review for our readers, or if any commissions were possible if you guys decide to buy anything (hey – that’s still supporting Dysautonomia, bc I am a fellow patient!!). ;)
My choices were not affected in any way by the decisions and responses of the shop owners. but I have stated in each description which items may be special ordered/designed, offer discounts, support particular organizations, and/or any personal benefit I may have if you purchase a particular item. :)
Cafe Press and Zazzle items are affiliate links, and if you decide to purchase that item through the link on my site, I will be paid a commission. Through October 2014 (Dysautonomia Awareness Month), 50% of my commission will go to Dysautonomia International to help fund their research and work for our community. :)